Orphans with Arthrogryposis

There are kids with Arthrogryposis all over the world who wait for a family to call their own. Every child should have a Mama and Papa to love them. Sadly many kids will never know the love of a family as they will live out their shortened lives in institutions. The children posted here are from Reecesrainbow.com If you can't adopt, you can donate to their grants on reecesrainbow.com Don't leave them to die in institutions.

Sunday, January 29, 2012

Meet Drake

Meet Drake!! 

He was just added to Reece's Rainbow

He is born in 2008, so he around 3 years old

His Reece's Rainbow profile can be found here!

He has Freeman-Sheldon Syndrome (FSS), which is a form of arthrogryposis. 

Kids with FSS have multiple joint contractures (arthrogryposis) plus other issues, like craniofacial abnormalities (mouth is stuck in a "whistling" position, which is why FSS is often called whistling face syndrome) 

Drake is affected by the AMC in all limbs and does have facial issues listed 

"Drake was diagnosed with Freeman-Sholden Syndrome at birth based on the following observations after delivery: the four extremities of the child were with difficult passive mobility, contractures on the elbow and knee joints, and the bottom extremities were in permanent abduction. Ulnar deviations of fingers of the upper extremities were present and characteristic crossing of the fingers and deformations of the feet. Spontaneous movements of the right hand are missing, difficult passive flexion in the elbow and wrist joints. X-rays of the right hand: doesn’t show changes in the covered bones and joints. Facial dismorphism is present in the child: small mouth with characteristic form, and furrowed chin." 

Despite being in an orphanage likely since birth and being admitted to a hospital a lot in his first 3 years for bronchitis and pneumonia he is making great progress recently!!

"Drake was in the hospital several times during the first 3 years of his life for bronchitis and pneumonia. He is healthy now and his development has recently begun to improve in all areas. In the past 4 months, he has begun to grab toys, hold them and transfer them from hand to hand. He is now moving his legs and rolling over.  When laying on his back, he scoots around, turns in circles and moves around his crib. He can stay upright when placed in a sitting position. He looks around and is very curious when placed sitting up or allowed to be out of his crib. He plays with toys and focus on them during play. He shows a preference for certain toys. He will knock blocks together to make noise when imitating staff members. He can mimic some of their actions with toys.  He smiles and laughs out loud. He mimics the facial expressions of others. He pronounces sounds and combinations of sounds and can say a few words. He knows the names of some of the adults that work with him. He understands everything that is said to him. He follows verbal directions. He is beginning to eat food from a spoon. When he takes his food in a bottle, he holds the bottle independently to feed himself. He has recently begin making gains in all areas of his development."

 He is an Eastern European County. 

Single Moms, Large Families and older parents are all able to adopt him

He is three years old so this a GREAT time to get him home to a family where he can get adequate medical attention and most important LOVE! 

Reece's Rainbow only has file for a short time so if your interested in adopting him inquire about him soon! Email Reece's Rainbow here

1 comment:

  1. It's my little boy. My heart breaks to see that over a year ago you were petitioning for my baby and he had to wait a whole other year before we found him, but praise God we did - we are coming for you baby!