Orphans with Arthrogryposis

There are kids with Arthrogryposis all over the world who wait for a family to call their own. Every child should have a Mama and Papa to love them. Sadly many kids will never know the love of a family as they will live out their shortened lives in institutions. The children posted here are from Reecesrainbow.com If you can't adopt, you can donate to their grants on reecesrainbow.com Don't leave them to die in institutions.

Thursday, December 30, 2010

A little girl in Taiwan

A 17-month old little girl with AMC and a cleft palate is available for adoption in Taiwan. She is doing very well! For more information and pictures please contact Childofmyheart@aol.com

Wednesday, December 29, 2010

Look who met his family!!!!!


Meet Cadence!

Meet Cadence

She was born in June 2009

She has Arthrogryposis and a Cleft Palate

Further Information and PICTURES available through her agency: Contact Stephanie at Lifeline adoptions: Stephanie.Carpenter@Lifelineadoption.org

Reeces Rainbow profile can be found here

Friday, December 17, 2010

Look who met her family!!!!!


Meet Henry

Meet Henry!!!

(more pictures available)

He will be just 5 months old on Christmas Eve.

He is available for adoption immediately

He has Arthrogryposis and a cleft palate.

His legs and feet are definitely affected by the AMC, his arms/ hands may or may not be affected

He can be adopted with other children in his orphanage.

Now is the PEFECT time to go rescue this baby boy because therapy and casting is most effective in infancy!

He has ZERO in his adoption fund through Reece's Rainbow

To learn more about Henry and to donate to his adoption fund click here

Tuesday, November 30, 2010

Meet Perry!

He will be TEN YEARS old on Dec 2, 2010

He is walking and can run but has gait abnormailities and he can even balance on one leg

He Sounds AMAZING!

"He is left handed and can feed himself and perform other self-help skills. He can draw and trace and is learning to write. At this time, he can write his name when looking at a model. The staff believes that he is capable of learning to write independently, he just needs more opportunities to learn. His communication skills are very good. He speaks in sentences, can answer questions and communicates his thoughts clearly. He can recite all the days of the week, but sometimes does not get the order correct. He can identify his colors and count to 5. He knows his first and last name and responds to them. He distinguishes between up & down and left& right. He identifies all of his body parts. He can put together a model of the human body without any assistance or prompting from an adult. He builds with blocks and can make patterns and build steps with them.His personality is described as a lively and cheerful. His attention span is short unless he is interested in the activity. He is well oriented to the institution and his living area. He is able to participate in all activities and has jobs that he does in his living area. He responds with appropriate emotions to situations. He is able to bond with adults and other children. He is described as a very social child and is well liked at the institution."

There are more pictures of him Available!!

Learn more about Perry

Contact Reece's Rainbow for more information!

Sunday, November 28, 2010

Saturday, November 27, 2010

A new picture of Victoria!!

This is Victoria!

She will be 8 years old on Dec. 12th

She is happy and affectionate. Likes to play with dolls and pretend to be a mommy

She is smart and her caregivers love her!

Her special need is Arthrogryposis that appears to only affect her hips, knees and feets. (other wise known as Lower Extremity Only Arthrogryposis)

She is not currently walking but with interventions in the form of therapy, casting and orthopedic surgery her potential for independent mobility is GREAT!

She is currently living in an institution where she likely only gets her basic needs met.

If she isn't adopted she will remain bedridden for life

Her profile on Reece's Rainbow can be viewed here: http://reecesrainbow.org/victoria-1

Contact Reece's Rainbow for more information on Victoria!!

Tuesday, November 2, 2010

Meet Donovan

Meet Donovan

He is 18 months old

He is a playful little boy who is liked very much by his caretakers. Donovan loves food and will get excited when he knows that it is time to eat. He is very friendly and has a ready smile. His favorite activity is playing with other children.

He has upper extremity Arthrogryposis (this isn't specified but his description doesn't list any joint contractures in his legs/feet)

To learn more about Donovan click here

Friday, October 29, 2010

Jordan has a family!!

This little boy has Arthrogryposis and has waited a long time for a family. He finally found a family all his own!!

Monday, October 4, 2010

Friday, October 1, 2010

Gage found his family!

cute little Gage with the curly hair will finally have a Mama and Papa of his own. Congratulations to Gage and the lucky family who is bringing him home!

Tuesday, September 21, 2010

Meet Ian

Ian is a boy living in Eastern Europe as an orphan

He has Arthrogryposis affecting all limbs

Read more about Ian here

Ian has a $5000 grant through Brittany's Hope

this grant expires in less then 3 months!!!!

is he YOUR son?!?!??

Sunday, September 12, 2010

Abigail has a $5000 Grant

Abigail has a $5000 grant through Brittany's Hope

this grant expires in less then 3 months!!!!

She has lower extremity Arthrogryposis

is she YOUR Daughter?!?!??

For more information click here

Meet Liam

Meet Liam

He has upper extremity Arthrogryposis

Meet Paul

Meet Paul

(Scroll Down)


On September 20th, 2010 this little guy

will officially become

Aaron Vanya Nalle

no longer an orphan!

You can read all about it here

Meet Madeline's Family!

Meet Madeline's Family!

Click here to donate to her families adoption fund

A typical international adoption costs $20,000 so every penny helps!

Meet Leo

Meet Leo

Leo is 5.5 years old (born Dec. 4, 2002)

He is happy and social

He has lower paraplegia, secondary arthrogryposis, right-side scoliosis,
convergent squint

He is likely living in a mental institution where the conditions are less then ideal for a child

To see Leo's profile on Reece's Rainbow or to find out more information
click here

Monday, August 30, 2010

Madeline has a family!!

Little Miss Madeline in Eastern Europe has a family!! She has so much potential, I cant wait to hear who will be the lucky parents!

Saturday, August 28, 2010

Meet Josiah

Meet Josiah

This little guy is 4 years old

He is available for adoption

He is living in China at Harmony House

You can find China's requirements for adoptive families here

Unfortunately he doesn't have any grants available

He has bilateral clubbed feet, a dislocated hip and he can't use his arms due to deformities. I am guessing that his overall diagnosis is Arthrogryposis

He has adapted very well to his limitations!

You can find his profile here

Could he be YOUR son?

Friday, August 27, 2010

Aaron's Family

Please keep the Nalles in your thoughts and prayers. They once again are facing some serious difficulties in getting Aaron out of that institution and home to his brothers.

A New Picture of Madeline

A New picture of Madeline...she's growing up!

She is 5 years old

She has likely been an orphan since birth

She is lucky to still be at her orphanage. Because she is 5 she is at risk of being transferred to an institution very, very soon.

Once she is transferred she maybe severely neglected & will have absolutely no chance at a future

She sits well, eats independently, likes to play, reacts well to adults, speaks in sentences and is independently mobile in her wheelchair and overall she a very sweet and joyful little girl.

She happens to have Arthrogryposis which includes clubfeet

She has so much potential. Her forever family needs to find her & fast!

She has $2000 in the grant fund through Reece's Rainbow toward the cost of her adoption

If you aren't in a position to adopt you can donate to her grant fund!

Is she YOUR daughter????

Saturday, August 21, 2010

Arthrogryposis Awareness

Arthrogryposis Awareness

Arthrogryposis Multiplex Congenita (AMC) means: Multiple Joint Contractures Present at Birth

A joint contacture is a joint that lacks normal range of motion or in other word is stiff or curved.

Its an umbrella term, which means AMC can be part of many syndromes & other underlying conditions.

More then 3 joints have to affected in 2 areas of the body to have a diagnosis of AMC
It occurs 1 in 3,000 live births

All joints can be affected including the spine & jaw

Joint contractures develop because the unborn baby fails to move properly. Movement is vital to proper joint development

Cognitive development (intelligence) is almost always normal

There are approx. 400 types of Arthrogryposis

About 1/3 of cases of AMC are Amyoplasia type which is non-genetic & sporadic in the population. There is no known cause for Amyoplasia.

Most Distal Arthrogryposis types & most syndromes (like Escobar, Sheldon-Hall) are genetic in origin

20-30% of babies born w/ AMC will die in the newborn period because they have a lethal genetic type or they severe central nervous system dysfunction

Some individuals do not have an identified type

Common joint contractures include: Clubbed feet or vertical talus, extended or flexed knees, dislocated and/or externally rotated hips, internally rotated shoulders, extended or flexed elbows, flexed wrists, adducted thumbs (stuck-in-palm), fingers are fisted or extended

There is no cure for Arthrogryposis, just treatment to reduce the severity of the joint contractures & increase the function level of the individual.

Treatment often includes: Stretching the joints multiple times per day, serial casting, tendon releases & lengthening, osteotomies, splinting & bracing, external fixators, physical, occupational & speech therapy.

Despite the fact there is no cure most kids with Arthrogryposis grow up to be independent & successful adults

More research needs to be done in the cause of Amyoplasia, mapping the genes in genetic types & long-term outcome studies need to done for common surgical procedures in this diagnosis.

To learn more about Arthrogryposis: www.amcsupport.org

Tuesday, August 17, 2010

2.5 yr w/ AMC needs a family-Domestic

If anyone is considering domestic adoption, especially of an AMC'er AMC Suport has a contact who is an guardian ad litem in the state of Florida for a beautiful, curly haired, 2 1/2 year old little boy with AMC and she is desperately seeking help in finding his forever family!

If you are a member of AMC Support: www.amcsupport.org you can find more info as well as a few photos in the Adoption Forum of our message boards.

If you are not a member of AMC Support, you're more than welcome to join (its *Free*) by registering at the following link: www.amcsupportorg/forum/ucp.php?mode=register

If you do not wish to register with the website, please feel free to contact: bod@amcsupport.org for more information. We would very much like to see this child find his Forever Family.

Grady has a family!!!!!!!!

Grady has a family

Please go here:
If you want to read about his new family and/or donate to their adoption fund!

Update on Aaron!

Aaron's family was forced to come home due to paperwork issues in Aaron's region.

Thankfully they're scheduled to go back to his country at the end of August for court. They're hoping there won't be any more 'bumps' in the road to bringing Aaron home!

If you want to follow their journey back to Eastern Europe or help them with last minute adoption expenses go to their blog.