Orphans with Arthrogryposis

There are kids with Arthrogryposis all over the world who wait for a family to call their own. Every child should have a Mama and Papa to love them. Sadly many kids will never know the love of a family as they will live out their shortened lives in institutions. The children posted here are from Reecesrainbow.com If you can't adopt, you can donate to their grants on reecesrainbow.com Don't leave them to die in institutions.

Friday, June 18, 2010

Aaron's Family is coming

Remember Aaron?????

He has Arthrogryposis in all limbs.

His family committed to him around Christmas of '09, unfortunately he had already been transferred to an institution but that didn't stop the Nalle Family.

They've done most of the paper chase and have waited and waited and waited and they have a DATE to go to Aaron's country to meet him & finalize the adoption!!!!

July 13th is the big day!

To follow their journey to Eastern Europe or to donate to last minute adoption expenses click here: http://covenantbuilders.blogspot.com

Saturday, June 12, 2010

Elizaveta has been waiting for EIGHT Years!!!

When I first started following the waiting children on Reece's Rainbow back in 2007 when I found a link on my friend Valerie's blog it wasn't too long after that Elizaveta was listed.

That was almost THREE YEARS ago and she is STILL waiting on her forever family.

She is EIGHT years old has have NEVER known the love of a family. Imagine being 8 years old & never ever calling anyone "Mom" & being comforted by a mother (or a father!) She is likely living in an institution getting the just basic necessity of food, water & shelter.

There is very little information on how her Arthrogryposis affects her. I would assume she is affected in at least her legs because if it was "uppers only" I'm sure that would be said. Reece's Rainbow lists her has smart, social & able!

Could you be the family she needs to Blossom??????

Here is here information from Reece's Rainbow

Girl, Born January 2002

Elizaveta doesn't have a lot to smile about, but isn't she a LOVE?? She was born with arthrogryposis. Despite her disability, she is very able, smart, happy, and social. She will truly blossom in a loving family!

  • 2 trips
  • One parent for first trip, about one week
  • Both parents travel for 2nd trip, only 4 days
  • Region prefers no more than 3 children at home
  • Total program and travel fees under $19k
  • Fee includes a $500 orphanage donation and a $500 waiting child donation
  • Multiple children can be adopted simultaneously (from the same orphanage)
  • Married couples and single mothers may apply
  • Easy travel and comfortable accommodations in Moscow

Our agency partner involved with this adoption is About A Child. Please contact Victoria Kats at 888.596.2816 888.596.2816 for more information.

Friday, June 11, 2010

Lets talk about Madeline

When I first saw Madeline's picture on Reece's Rainbow I gasp at how cute she is!!!! She is the little girl in the red dress!! Madeline was born in 2005 and is STILL waiting for her forever family to find her!

I found out from another Mom who adopted AMCer's & has seen more pictures of Madeline that she is mildly affected in her arms and is very functional!

Reece's Rainbow recently post an update on Madeline!

UPDATE! (June 2010): Madeline is blessed to still be at the baby house. She is facing the institution very soon. Madeilne is not able to walk, but she independently operates her own wheel chair and is mobile in that way. She is smart, speaks in sentences now, eats by herself, and is really doing well. Please don't let Madeline spend one day in an institution! She is so sweet and has such tremendous potntial. Surgery for her legs and feet could offer her the true mobility and independence she has never known.

Did you read that SHE IS FACING INSTITUTION VERY SOON!!!!!!!!!!!

Lets NOT let that happen!!!!!!!!!!

The fact she is using a wheelchair is encouraging. She is very mildly affected in her hands and arms. & she'll be very functional!

Here is her additional information from Reece's Rainbow

Girl, Born May 20, 2005

Madeline is so pretty, and is patiently waiting for her family! She has brown hair and eyes. She was born with arthrogryposis and club feet. From her caregivers: Speaks separate words, begins to speak in phrases, sitting well, eats independently, likes to play, reacts well to adults, very sweet and joyful little girl.


If Madeline is your newest daughter please contact Reece's Rainbow!

She has $1000 toward the cost of her adoption in RR account!!

Thursday, June 10, 2010

A New Picture of Grady

There are new pictures of Grady!!!!!!

and look how he has grown!!!!!!!!!!!

Isn't he an absolute doll!!!!!!!! He has lower extremity Arthrogryosis & based on his previous pictures, with the right treatment he has the potential to walk. His legs appear to "extended" or stuck straight. An extension contracture in the knee only happens in 20% of kids with AMC. And 90% of kids of extended knees become very functional walkers (I can site this in a medical journal if anyone care!). The only thing I can't tell in this picture is how or if his hips are affected. If they are mildly affected (or hopefully not at all) & are not stuck in a sitting position with treatment he'll do great! And because his hands aren't affected he should do even better with mobility if given the right tools & therapies!


Here is Grady's Reece's Rainbow Profile information!

Boy, Born May 14, 2007

SO happy to finally have new photos of Grady! He is just as adorable as I always thought. Blonde hair and bright blue eyes! What a snuggable and happy little boy! Grady was born with arthrogryposis of his lower limbs. His hands and arms are unaffected. He is not able to walk at this time. He is 3 now, and will so greatly benefit from surgery, therapy, and loving family to encourage him! Without this, he will remain bedridden for the rest of his life.
Grady is completely typically developing cognitively. He is described as very social and smart, talkative, playful, and active. He has no cognitive delays or speech problems whatsoever. Please consider Grady for your son!
More photos available!

If you think Grady is for your newest son & addition to your family contact Reece's Rainbow!

Saturday, June 5, 2010

The Children's Home & Family Society

The description of 4 additional children with Arthrogryposis available for adoption can be

requested by emailing

Contact: ltrinh@chsfs.org

These Children's pictures & descriptions cannot be listed here.

Friday, June 4, 2010

Anastasia's Birth Month!

In honor of Anastasia turning one-year old on June 25th lets see if you can get some donations into her Reece's Rainbow account toward the cost of her adoption for when her forever family finds her!! She currently has NO money in her account.

The average cost of an international adoption is $20,000-$30,000 so every single penny helps!!

To donate toward the cost of Anastasia's adoption click here

Its through PayPal (you don't have to have a paypal account to donate) PLEASE in the note section designate that the money should go towards Anastasia's account. If you can't figure out where the note section is email Reece's Rainbow (bamaroberts@comcast.net) & let me know who your donation should towards!

If Anastasia could be your daughter PLEASE contact Reece's Rainbow!

Rainbow Kids

Rainbow Kids is another organization that advocates for orphans! Unlike Reece's Rainbow they advocate for kids who are typical but they also have a special needs section! They have several kids listed with Arthrogryposis & other related congenital orthopedic special needs (like clubfoot)

In order to view these kids profiles you'll have to create an account but its very easy to do so.

To create an account click here

Most of theses kids profiles have limited information & few view have pictures attached but they have the contact information of the agency they're listed with

Once you've created an account click here to view the profiles of kids with Arthrogryposis

This is Delilah!!

This doll's name is Delilah. She is just over a year old and has a syndrome called Larsen's Syndrome. Larsen's syndrome is congenital dislocations of the joints. However, some kids with this syndrome are also born with Arthrogryposis. In other words, Larsen's Syndrome can have Arthrogryposis as a trait & is under the '"umbrella" of Arthrogryposis.

Girl, Born March 26, 2009
Sweet Deliliah was born with Larsen's Syndrome. She does have additional limb deformities, in addition to the typical hand and foot differences common in Larsen syndrome. Hoping to learn more about any possible medical or cognitive needs she has as a result of her genetic differences.

To inquire more about becoming Delilah's family click here

Thursday, June 3, 2010

Victoria has lost her family

I'm sad to say this adorable little girl has lost her family. The family that had committed to bring her home is now unable to do so

This sweet little girl is living in an institution in Eastern Europe where she isn't allowed to reach her full potiental due to lack of medical treatment & love from a forever family.

She is already 7 and a half years old & the sooner she is brought the better her mental, physical & emotional development will be long-term

Her Arthrogryposis seem to affect only her lower extremities & is clearly a "classic" case of AMC (externally rotated hips, flexion contractures of the knees & equniovarus (clubfoot) deformity of her feet) With the right medical intervention this little girl has the potential to be standing & walking assisted maybe even unassisted in a couple years time.

She reminds me a lot of Evan & look how far he has come with the correct medical intervention despite having severe upper & lower extremity Arthrogryposis. He was adopted at 3.5 years old from Ukraine!

If Victoria is your daughter click here for more information