Orphans with Arthrogryposis
Monday, December 19, 2011
Wednesday, November 16, 2011
Monday, November 7, 2011
And "Patrick?" Well his name is now Joshua! And his mom and dad and brother and sisters are all excited! You can donate to his adoption here. His family just finished their dossier a little over a week ago and are waiting for permission to travel! Visit their family blog here!
Sunday, November 6, 2011
wish you had a REALLY nice camera? wish you could take better pictures of your kids and grandkids and dogs and cats? wish you didnt have to spend so much to have such a nice camera? well guess what! YOU have a chance to donate just 20 dollars to help bring a little boy home from Serbia. and in doing so YOU GET A CHANCE TO WIN AN AWESOME CAMERA KIT!!! camera, lens, bag, and more! go to
and donate so YOU can have a chance to win a Nikon D3100! kids sell wrapping paper for schools, and you could spend 20 bucks easily on school and sports fundraisers. you could spend 20 bucks easily buying a fancy coffee every day. but you really have a special opportunity here to spend $20 to give a boy a LIFE! and you could win an awesome camera for doing so! well? what are you waiting for? get on over and donate! lets get this little boy a chance at a real future in a family filled with love, instead of a cold sterile insititution where no one will love him as their own. 20 dollars people. thats all it takes. donate and you could win a camera! but if you dont you still win because you helped give a child the gift of a family! THAT is priceless.
Tuesday, October 11, 2011
Sunday, October 2, 2011
This message is from Kids To Adopt that originally posted on September 27th: "URGENT! Jack needs a family by next month or he will not have an opportunity for adoption - ever! We have a $5,000 grant available for him. Please contact our office if you are interested in info on this sweetie!"
Jack is seven years old and has arthrogryposis in his lowers only. He is fun! I would love to see him with straight legs and casted feet, walking around! Please inquire with the agency for more information.
UPDATE: I copied and pasted the information below straight from Kids To Adopt's website. Jack is from Russia and needs a family before moving to the institution! It's worse than I thought. Please help share his story!
Jack’s StoryJack was born in November of 2004. He was born at 34 weeks weighing 4.4 pounds. His mother did not receive prenatal care. Jack is a cheery young boy with a sweet smile.
DisabilitiesHe has many disabilities including arthogryposis of the lower extremities, hernias, hip joint dysplasia, scholiosis and hemangiomas to name a few. This little guy’s legs are stuck in a criss-cross position but that doesn’t stop him from getting around using his upper body which is very strong. Jack is very small and will continue to stay small for his age. At 5 years 2 months he was only 26 ½ inches tall and weighed 22.2 pounds. We are not sure that they are measuring his legs in his height. Since he can’t straighten them, getting a realistic measurement on him is pretty much impossible. We have excellent developmental information. Jack has very good upper body dexterity.
His future is grim without a family.Jack will never have the chance to get an education or the medical care he needs where they plan to move him. He will never get released from the institution so, this will be his life sentence! This special boy needs a family with a huge heart and a wheelchair accessible home so he can learn how to be independent. A family adopting Jack must have access to good medical care or a Shriner’s Hospital because Jack will definitely need some medical intervention when he comes home.
Contact us today if you are interested in adopting this sweet boy!
Click here to go straight to his page. Email Katie if you are interested! firstname.lastname@example.org
Friday, September 30, 2011
The first is a little two-year old girl with what looks to me like amyoplasia, the most common form of arthrogryposis. She's affected in all four of her limbs. Apparently her family was not able to care for her and she was left in hospital care for over a year. Now she's a bit delayed in language, but can catch up once in a family environment. Her legs are in a good position for walking since they have the straight-leg contractures instead of the bent-leg contractures. She is said to be always smiling and always in a good mood. Click here to see two pictures and a short bio. (Child believed to be in Thailand. Unconfirmed.)
The second is a little five-year old boy with arthrogryposis affecting just his lower extremities (hips, legs and feet). The good news is that he received Ponseti casting for his club feet which is the best method. His first surgery was when he was six months old (probably the tendon release following casting?), and according to his bio he's had several surgeries. He is very advanced in his self-care including feeding himself, changing his clothes and going potty. Plus he is even walking a bit! Click here to see his bio. (Child in China.)
Sunday, September 25, 2011
From one of our adoptive families who met her in September 2011: "The great news is that she does have rotation in her shoulders and some in her hips and also they say she does NOT have hydrocephalus! Her heart condition is basically that she's not active enough – her heart-rate isn't stimulated often. She had a brain scan that showed she is normal except for enlarged ventricles in the brain, which they did not feel should affect the function of her brain. She is very weak, though. She cannot sit on her own and they said she could hold her head up but when I held her her poor little neck could hardly stay up (I'm sure that would change with some p/t). They handed her right to my husband – a big guy – which frightened her, poor little Anastasia! They told us she liked music so I took her and sang to her and she calmed a bit but then still wanted her nanny. I can't tell you how much we truly WANTED so badly to take her home with us! She is just precious! But she has never been out of that room and will really need a family who is experienced with institutionalization challenges, and to help Anastasia LIKE the world around her!"
The great news you can take away from this report is that her brain is so much better off than her scary and vague diagnosis of "Other Specified Disorder of the Brain" would lead you to believe! No hydrocephalus, no permanent brain damage and no signs of FAS! This little one's biggest issue is being in an institution! Being in a loving family would eliminate many of her current challenges! What excellent news!
The hard part will be initial bonding and bringing her home. She'll need at least one parent who can be with her constantly at first while she learns to trust her new situation and slowly explore her world. Most Home Studies (the first step in adoption) will offer or require classes on helping children from institutionalized settings. There is much hope for Anastasia!
As far as her arthrogryposis, the weakness sounds like par for the course, as most kids with AMC have muscle weakness. Anastasia has never had any intervention that we know of so she'll be starting from the beginning. Of course she's only a little over two years old and there is still time for intervention to have a huge impact. Her muscles can be strengthened, and often naturally are throughout a normal day once she's removed from a crib in an institution setting. Remember kids in institutions do not have toys to play with or everyday stimulus that other children receive. I'd love to see this girl with a ball! A little time in a loving home with one ball will be what her core muscles need to hold that head up high!
Based on this new information there is no reason to believe that Anastasia would not one day be independent in her daily activities with good physical therapy and a loving home. If her shoulders are not externally rotated (if I'm reading that right) then physical and occupational therapy on her upper body will also be easier, and her range of motion may be greater. I hope a family finds her soon!
Sunday, September 18, 2011
From the family: "Please pray and advocate for precious little Anastasia - I have a lot to write about her and I hope her family will come soon as there is so much hope for her!"
We look forward to learning more about Anastasia since any new information about these kids always comes from other parents adopting out of these orphanages! Stay tuned!
Friday, September 16, 2011
Go see the picture of Henry w/ his Momma and his siblings: http://bringinghenryhome.blogspot.com/2011/09/home.html
Wednesday, September 14, 2011
Friday, September 9, 2011
Monday, September 5, 2011
He has arthrogryposis in all limbs but only his feet are affected in his legs and he has limited range of motion in his arms.
Although he has a diagnosis of arthrogryposis he is a VERY independent six-year old.
He is from China.
If you're interested in reading more about Timothy or inquiring about adopting him please click here: http://www.anorphanswish.org/whos-who-wednesday-timothy-waiting-for-a-family
Sunday, August 21, 2011
Remember Henry? Well his family just met him for the first time! And they posted new pictures!
Tuesday, August 16, 2011
Isn't she adorable!!
She sounds like she has received STELLAR care thus far considering she is an orphan!
Sandra has had surgeries on both Achilles Tendons to straighten her feet. She has braces for her hands. She is under the care of an orthopedic doctor, receives physical therapy, gymnastics and massage therapy. Sandra can sit with support, crawl, and sit unassisted on her knees. She can reach for a toy and manipulate them. She can move around in a walker.
Sandra is described as "very talkative and inquisitive". She is alert, makes eye contact and is active.
He profile on Reece's Rainbow can be found here: http://reecesrainbow.org/sandra
If you think Sandra could be your daughter please contact: Reece's Rainbow
Thursday, August 4, 2011
Saturday, July 30, 2011
Friday, July 29, 2011
Besides arthrogryposis, Raymond also has optic atrophy (mild or severe vision loss, and possible trouble with colors) and he's cross-eyed. For support for optic atrophy go here.
If you can envision this little man with the cute glasses in your family (available to large families too!) please contact Reece's Rainbow.
Thursday, July 28, 2011
Saturday, July 23, 2011
Patrick was NOT abandon at birth like most infants w/ AMC are in his country. Please go read Julia's Blog post to read Patricks sad, sad story and why he is now available for adoption.
If you think this sweet face could be your son please go here to learn more about Patrick.
Tuesday, July 12, 2011
Welcome Home Victoria!!!
And she is doing great at home she has gained THREE pounds!! http://wronginalltherightways-travcat.blogspot.com/2011/07/my-reminder-to-remember.html
Welcome Home Ethan!!!
Tuesday, July 5, 2011
Wednesday, June 29, 2011
Tuesday, June 14, 2011
Meet Victoria Rita
Meet Ember Grace Senti
Meet Ethan Ruslan DeVowe
Saturday, June 11, 2011
A generous person has offered to match every donation made to baby Joel's (his RR profile: tinyurl.com/4z9h4qe) adopting fund up to $2000!! & if we get to $2000 by the 13th the donor will throw in another $500! So even if you only have $5 PLEASE give bc it will $10! Joel is only 8 mons old! The more $$ in his account the more likely he'll be adopted! & we all no the sooner treatment for AMC starts the better! PLEASE SHARE THIS!!!!
Donate Here: tinyurl.com/4z9h4qe
Here is the blog post with more details! http://www.laeliasky.com/2011/06/09/my-thats-generous/
Monday, June 6, 2011
Its an interview of Dr. Harold van Bosse from Shriners Hospitals for Children in Philadelphia, PA. He specializes in arthrogryposis and treats many of the former Reece's Rainbow kids who have AMC.
This video was done by Margarget Chaidez. She is making a documentary about AMC called The Sweetest Gift: Living with Arthrogryposis
Arthrogryposis Awareness Day is June 30th!! Wear blue that day!
Moira meets her Mom and Dad!
Please say a few extra prayers for Moira she shows very little emotion because of the conditions she has endured in the orphanage.
Ember meets her Mom and Dad!
Ethan (Gage) meets his Mom and Dad!
Wednesday, May 4, 2011
They have about eight kids with Arthrogryposis (or other similar joint disorders) listed.
Here is their section on Arthrogryposis: http://specialneedsadoption.rainbowkids.com/Arthrogryposis_-_Joint_Disorders.aspx
Click "waiting children with Arthrogryposis" on that page and you'll be taken to their listings. You have to register and login before you'll able to see the listings
First up is the Ferrone's! Appointment on May 17th!
They're adopting this sweety and another little girl with a different diagnosis
You can follow their journey here: www.wronginalltherightways-travcat.blogspot.com
Then The Senti's appointment is May 24th!
They're adopting this cutie pie!
You can follow their journey here: http://addingasenti.blogspot.com/
And last but not least is the DeVowe Family! Their appointment is May 30th
They're adopting this handsome young man!
You can follow their journey here: http://www.hebrewselevevone.blogspot.com/
Tuesday, May 3, 2011
They could really use your help to fund the rest of this adoption. They still need a good deal of money before they leave to go meet the girls!
Click here for their Family Sponsorship Page on Reece's Rainbow!!!
Remember no amount is too small!!!!!!!
Monday, April 11, 2011
This is Alexis!
Isn't she GORGEOUS!??
She is ELEVEN years old!
She needs a family ASAP! And she REALLY wants one too!
She is eligible to be adopted by LARGE FAMILIES and OLDER PARENTS (up to age 55)
She has Arthrogryposis in all four limbs and mild mental retardation is listed too (AMC and mental retardation are *not* diagnoses that co-exist very often so I am hoping this diagnosis is more a result of being in an institution likely since birth)
Thankfully she is an institution where is loved and has access to an outside aide organization but this is NOT a substitue for a family!!
Ohh someone please go adopt her! She reminds me of a little girl I met in the waiting room at Shriners Philadelphia, she too was eleven, has AMC and had been adopted from China.
Her Reeces Rainbow profile can be viewed here: http://reecesrainbow.org/alexis3905
If you think Alexis would be a great addition to your family contact Reeces Rainbow!
Monday, March 14, 2011
Saturday, March 12, 2011
International adoptions are very, very expensive. Ranging from $15,000-$35,000 for 1 adoption of 1 or 2 kids.
Most families do not have this kind of money just sitting around so they have to fundraise for the money and apply for grants and save ever penny to fund the adoptions.
If these families didn't step out in faith these little girls would likely end up being transferred to mental institutions in a couple of short years where they would very likely die of neglect, starvation or an illness brought on by the extremely poor environments.
The Senti's are adopting Ember (formerly Tasha) and they are giving away two necklaces. For every $5 donated your name will be entered into the drawing! This giveaway ends on March 31st.
Go here to read about how to enter this giveaway!! http://addingasenti.blogspot.com/2011/03/necklace-and-bracelet-giveaway.html
The Ferrone's are adopting Moira and Nastya (Nastya has Apert Syndrome) and they're giving away a DIAMOND RING, a necklace and a set of earrings. By donating $5 you'll be entered into the drawing (or $20 will get you 5 enteries!), by donating a $1 you'll be entered into the drawing for either the necklace or the earrings!
Go here to read about how to enter this giveaway!! http://wronginalltherightways-travcat.blogspot.com/2011/03/give-it-away-now.html
So even if don't have much to give, every little bit helps (YES even a single dollar!!) to get these two precious little girls home, where they will be loved and cherished and have access to medical care and by donating through these giveaways you could win something too!!
MORE PICTURES AVAILABLE!!!!!!
His Reece's Rainbow Profile can be viewed here: http://reecesrainbow.org/joel2501
If you think little Joel is your son please contact Reese's Rainbow to inquire about Joel and if you meet the qualifications to adopt from Joel's country!!!
Friday, March 4, 2011
Saturday, February 26, 2011
Monday, February 21, 2011
Mercy is a year and half and has spina bifida and joint contractures of her lower limbs (which makes it likely that she has a secondary diagnosis of Arthrogryposis). Her joint contractures certainly affect her hips as they're dislocated and she has what appears to be a clubfoot on the right and probably a vertical talus deformity on her left. Her knees also look affected to me but it could be how she is holding them.
From her medical records: Myelocele of lumbosacral part of spinal cord (spina bifida, had surgery); flail legs; optic nerve atrophy; congenital hips dislocation, clubbed feet.
Her Profile can be found here: http://reecesrainbow.org/mercy-48
If you are not in a position to adopt please consider a donation to her grant fund (click on her profile above and click donate, be sure to specify the $$ is for her!) She currently has ZERO in her account! It costs around $20,000 to complete an international adoption. Many families want to adopt and are more then able to raise special children like Mercy but they simply cannot afford the upfront cost of $20,000+ to get them home. So every penny helps!
If you think Mercy could be your daughter please contact Reece's Rainbow!
If she is not adopted SHE WILL REMAIN BEDRIDDEN FOR LIFE!
She badly needs physical and occupational therapies and possibly serial casting and surgery.
Her diagnoses include: Arthrogryposis (I'm assuming all limbs because it doesn't state otherwise), bilateral (both) dislocation of her hips (this is part of AMC), hydrocephalus, unspecified heart condition, unspecified iron deficiency anemia and Retarded development following protein-energy malnutrition.
Please don't this list of diagnoses scare you away from making this beautiful little girl apart of your family. Most if not all of her medical conditions are treatable and her quality of life will be good w/ treatment!
Her Reece's Rainbow Profile can be found here: http://reecesrainbow.org/anastasia-4
If you are not in a position to adopt please consider a donation to her grant fund (click on her profile above and click donate, be sure to specify the $$ is for her!) She currently has $1329 in her account! It costs around $20,000 to complete an international adoption. Many families want to adopt and are more then able to raise special children like Anastasia but they simply cannot afford the upfront cost of $20,000+ to get them home. So every penny helps!
If she is your daughter please contact Reece's Rainbow for more info on Anastasia and the adoption process!
There are more photos available of Doyle!
From one of our adoptive families who visited with him in February 2011: "Doyle is precious, loves attention, very smart, loves piano and type of music. He has a smile that will melt your heart. Even though he only has a few fingers on his right hand he still grabs and holds things. He walks. Lovely Lovely child! "
If you are not in a position to adopt please consider a donation to his grant fund (click on her profile below and click donate, be sure to specify the $$ is for him!) She currently has $18 in his account! It costs around $20,000 to complete an international adoption. Many families want to adopt and are more then able to raise special children like Doyle but they simply cannot afford the upfront cost of $20,000+ to get them home. So every penny helps!
His Reece's Rainbow Profile can be found here: http://reecesrainbow.org/doyle-31
If you think Doyle could be your son contact Reece's Rainbow!
Saturday, February 12, 2011
and I'm sure they'd appreciate any donations you are able to give towards the cost of Gage's adoption! Here is their Reece's Rainbow Family Sponsorship page!
Sunday, February 6, 2011
Wednesday, February 2, 2011
If you think you could be Gage's Family please contact Reese's Rainbow ASAP!
Here is Gage's RR profile! http://reecesrainbow.org/gage-31
Tuesday, January 25, 2011
As did Madeline http://hebrewselevevone.blogspot.com/2011/01/happy-homecoming.html