Orphans with Arthrogryposis
There are kids with Arthrogryposis all over the world who wait for a family to call their own. Every child should have a Mama and Papa to love them. Sadly many kids will never know the love of a family as they will live out their shortened lives in institutions. The children posted here are from Reecesrainbow.com If you can't adopt, you can donate to their grants on reecesrainbow.com Don't leave them to die in institutions.
Monday, August 30, 2010
Saturday, August 28, 2010
This little guy is 4 years old
He is available for adoption
He is living in China at Harmony House
You can find China's requirements for adoptive families here
Unfortunately he doesn't have any grants available
He has bilateral clubbed feet, a dislocated hip and he can't use his arms due to deformities. I am guessing that his overall diagnosis is Arthrogryposis
He has adapted very well to his limitations!
You can find his profile here
Could he be YOUR son?
Friday, August 27, 2010
A New picture of Madeline...she's growing up!
She is 5 years old
She has likely been an orphan since birth
She is lucky to still be at her orphanage. Because she is 5 she is at risk of being transferred to an institution very, very soon.
Once she is transferred she maybe severely neglected & will have absolutely no chance at a future
Saturday, August 21, 2010
Arthrogryposis Multiplex Congenita (AMC) means: Multiple Joint Contractures Present at Birth
A joint contacture is a joint that lacks normal range of motion or in other word is stiff or curved.
Its an umbrella term, which means AMC can be part of many syndromes & other underlying conditions.
More then 3 joints have to affected in 2 areas of the body to have a diagnosis of AMC
It occurs 1 in 3,000 live births
All joints can be affected including the spine & jaw
Joint contractures develop because the unborn baby fails to move properly. Movement is vital to proper joint development
Cognitive development (intelligence) is almost always normal
There are approx. 400 types of Arthrogryposis
About 1/3 of cases of AMC are Amyoplasia type which is non-genetic & sporadic in the population. There is no known cause for Amyoplasia.
Most Distal Arthrogryposis types & most syndromes (like Escobar, Sheldon-Hall) are genetic in origin
20-30% of babies born w/ AMC will die in the newborn period because they have a lethal genetic type or they severe central nervous system dysfunction
Some individuals do not have an identified type
Common joint contractures include: Clubbed feet or vertical talus, extended or flexed knees, dislocated and/or externally rotated hips, internally rotated shoulders, extended or flexed elbows, flexed wrists, adducted thumbs (stuck-in-palm), fingers are fisted or extended
There is no cure for Arthrogryposis, just treatment to reduce the severity of the joint contractures & increase the function level of the individual.
Treatment often includes: Stretching the joints multiple times per day, serial casting, tendon releases & lengthening, osteotomies, splinting & bracing, external fixators, physical, occupational & speech therapy.
Despite the fact there is no cure most kids with Arthrogryposis grow up to be independent & successful adults
More research needs to be done in the cause of Amyoplasia, mapping the genes in genetic types & long-term outcome studies need to done for common surgical procedures in this diagnosis.
To learn more about Arthrogryposis: www.amcsupport.org
Tuesday, August 17, 2010
If anyone is considering domestic adoption, especially of an AMC'er AMC Suport has a contact who is an guardian ad litem in the state of Florida for a beautiful, curly haired, 2 1/2 year old little boy with AMC and she is desperately seeking help in finding his forever family!
If you are a member of AMC Support: www.amcsupport.org you can find more info as well as a few photos in the Adoption Forum of our message boards.
If you are not a member of AMC Support, you're more than welcome to join (its *Free*) by registering at the following link: www.amcsupportorg/forum/ucp.php?mode=register
If you do not wish to register with the website, please feel free to contact: firstname.lastname@example.org for more information. We would very much like to see this child find his Forever Family.
Grady has a family
Please go here:
If you want to read about his new family and/or donate to their adoption fund!
Aaron's family was forced to come home due to paperwork issues in Aaron's region.
Thankfully they're scheduled to go back to his country at the end of August for court. They're hoping there won't be any more 'bumps' in the road to bringing Aaron home!
If you want to follow their journey back to Eastern Europe or help them with last minute adoption expenses go to their blog.
Monday, August 2, 2010
August is Moira's Birthday Month!!!!!
Moira will be 1 year old on August 10th. She has a diagnosis of Arthrogryposis & cleft palate. Cleft Palate along with Arthrogryposis isn't super common its also not unheard of. Typically a child w/ AMC & cleft palate would have received lots & lots of treatment in the first year of life because the first year is when the joint contractures are easiest to stretch out & treat. Because Moira is an orphan in Eastern Europe she likely has received no treatment for her medical conditions & likely won't unless she is adopted.
Could Moira be YOUR daughter?
She currently has ZERO in her account through Reece's Rainbow. If you aren't in a position to adopt but want to help her future forever family you can donate to Moira's grant fund here (be sure to specify the money is for Moira's fund)
Moira's profile on Reece's Rainbow can be found here!