Orphans with Arthrogryposis
There are kids with Arthrogryposis all over the world who wait for a family to call their own. Every child should have a Mama and Papa to love them. Sadly many kids will never know the love of a family as they will live out their shortened lives in institutions. The children posted here are from Reecesrainbow.com If you can't adopt, you can donate to their grants on reecesrainbow.com Don't leave them to die in institutions.
Thursday, December 30, 2010
A little girl in Taiwan
A 17-month old little girl with AMC and a cleft palate is available for adoption in Taiwan. She is doing very well! For more information and pictures please contact Childofmyheart@aol.com
Wednesday, December 29, 2010
Meet Cadence!
Meet Cadence
She was born in June 2009
She has Arthrogryposis and a Cleft Palate
Further Information and PICTURES available through her agency: Contact Stephanie at Lifeline adoptions: Stephanie.Carpenter@Lifelineadoption.org
Reeces Rainbow profile can be found here
She was born in June 2009
She has Arthrogryposis and a Cleft Palate
Further Information and PICTURES available through her agency: Contact Stephanie at Lifeline adoptions: Stephanie.Carpenter@Lifelineadoption.org
Reeces Rainbow profile can be found here
Friday, December 17, 2010
Meet Henry
Meet Henry!!!
(more pictures available)
He will be just 5 months old on Christmas Eve.
He is available for adoption immediately
He has Arthrogryposis and a cleft palate.
His legs and feet are definitely affected by the AMC, his arms/ hands may or may not be affected
He can be adopted with other children in his orphanage.
Now is the PEFECT time to go rescue this baby boy because therapy and casting is most effective in infancy!
He has ZERO in his adoption fund through Reece's Rainbow
To learn more about Henry and to donate to his adoption fund click here
(more pictures available)
He will be just 5 months old on Christmas Eve.
He is available for adoption immediately
He has Arthrogryposis and a cleft palate.
His legs and feet are definitely affected by the AMC, his arms/ hands may or may not be affected
He can be adopted with other children in his orphanage.
Now is the PEFECT time to go rescue this baby boy because therapy and casting is most effective in infancy!
He has ZERO in his adoption fund through Reece's Rainbow
To learn more about Henry and to donate to his adoption fund click here
Thursday, December 16, 2010
Friday, December 3, 2010
Tuesday, November 30, 2010
Meet Perry!
He will be TEN YEARS old on Dec 2, 2010
He is walking and can run but has gait abnormailities and he can even balance on one leg
He Sounds AMAZING!
"He is left handed and can feed himself and perform other self-help skills. He can draw and trace and is learning to write. At this time, he can write his name when looking at a model. The staff believes that he is capable of learning to write independently, he just needs more opportunities to learn. His communication skills are very good. He speaks in sentences, can answer questions and communicates his thoughts clearly. He can recite all the days of the week, but sometimes does not get the order correct. He can identify his colors and count to 5. He knows his first and last name and responds to them. He distinguishes between up & down and left& right. He identifies all of his body parts. He can put together a model of the human body without any assistance or prompting from an adult. He builds with blocks and can make patterns and build steps with them.His personality is described as a lively and cheerful. His attention span is short unless he is interested in the activity. He is well oriented to the institution and his living area. He is able to participate in all activities and has jobs that he does in his living area. He responds with appropriate emotions to situations. He is able to bond with adults and other children. He is described as a very social child and is well liked at the institution."
There are more pictures of him Available!!
Learn more about Perry
http://reecesrainbow.org/perry
Contact Reece's Rainbow for more information!
Sunday, November 28, 2010
Ian's Grant Expires on Dec 10
Ian is a boy living in Eastern Europe as an orphan
He has Arthrogryposis affecting all limbs
Ian has a $5000 grant through Brittany's Hope
This grant expires Dec 10th!! Thats less than 2 weeks!
Learn more about Ian here!!
He has Arthrogryposis affecting all limbs
Ian has a $5000 grant through Brittany's Hope
This grant expires Dec 10th!! Thats less than 2 weeks!
Learn more about Ian here!!
Meet Jordan's Family!!
Meet Jordan's Family!
http://reecesrainbow.org/sponsorfrancis
You can domate to his adoption via this link!!
Saturday, November 27, 2010
A new picture of Victoria!!
This is Victoria!
She will be 8 years old on Dec. 12th
She is happy and affectionate. Likes to play with dolls and pretend to be a mommy
She is smart and her caregivers love her!
Her special need is Arthrogryposis that appears to only affect her hips, knees and feets. (other wise known as Lower Extremity Only Arthrogryposis)
She is not currently walking but with interventions in the form of therapy, casting and orthopedic surgery her potential for independent mobility is GREAT!
She is currently living in an institution where she likely only gets her basic needs met.
If she isn't adopted she will remain bedridden for life
Her profile on Reece's Rainbow can be viewed here: http://reecesrainbow.org/victoria-1
Contact Reece's Rainbow for more information on Victoria!!
She will be 8 years old on Dec. 12th
She is happy and affectionate. Likes to play with dolls and pretend to be a mommy
She is smart and her caregivers love her!
Her special need is Arthrogryposis that appears to only affect her hips, knees and feets. (other wise known as Lower Extremity Only Arthrogryposis)
She is not currently walking but with interventions in the form of therapy, casting and orthopedic surgery her potential for independent mobility is GREAT!
She is currently living in an institution where she likely only gets her basic needs met.
If she isn't adopted she will remain bedridden for life
Her profile on Reece's Rainbow can be viewed here: http://reecesrainbow.org/victoria-1
Contact Reece's Rainbow for more information on Victoria!!
Tuesday, November 2, 2010
Meet Donovan
Meet Donovan
He is 18 months old
He is a playful little boy who is liked very much by his caretakers. Donovan loves food and will get excited when he knows that it is time to eat. He is very friendly and has a ready smile. His favorite activity is playing with other children.
He has upper extremity Arthrogryposis (this isn't specified but his description doesn't list any joint contractures in his legs/feet)
To learn more about Donovan click here
He is 18 months old
He is a playful little boy who is liked very much by his caretakers. Donovan loves food and will get excited when he knows that it is time to eat. He is very friendly and has a ready smile. His favorite activity is playing with other children.
He has upper extremity Arthrogryposis (this isn't specified but his description doesn't list any joint contractures in his legs/feet)
To learn more about Donovan click here
Friday, October 29, 2010
Jordan has a family!!
Thursday, October 7, 2010
Monday, October 4, 2010
Friday, October 1, 2010
Gage found his family!
Tuesday, September 21, 2010
Meet Ian
Ian is a boy living in Eastern Europe as an orphan
He has Arthrogryposis affecting all limbs
Read more about Ian here
Ian has a $5000 grant through Brittany's Hope
this grant expires in less then 3 months!!!!
is he YOUR son?!?!??
Sunday, September 12, 2010
Abigail has a $5000 Grant
Abigail has a $5000 grant through Brittany's Hope
this grant expires in less then 3 months!!!!
She has lower extremity Arthrogryposis
is she YOUR Daughter?!?!??
For more information click here
Meet Madeline's Family!
Meet Madeline's Family!
Click here to donate to her families adoption fund
A typical international adoption costs $20,000 so every penny helps!
Meet Leo
Meet Leo
Leo is 5.5 years old (born Dec. 4, 2002)
He is happy and social
He has lower paraplegia, secondary arthrogryposis, right-side scoliosis,
convergent squint
He is likely living in a mental institution where the conditions are less then ideal for a child
To see Leo's profile on Reece's Rainbow or to find out more information
click here
Monday, August 30, 2010
Madeline has a family!!
Little Miss Madeline in Eastern Europe has a family!! She has so much potential, I cant wait to hear who will be the lucky parents!
Saturday, August 28, 2010
Meet Josiah
Meet Josiah
This little guy is 4 years old
He is available for adoption
He is living in China at Harmony House
You can find China's requirements for adoptive families here
Unfortunately he doesn't have any grants available
He has bilateral clubbed feet, a dislocated hip and he can't use his arms due to deformities. I am guessing that his overall diagnosis is Arthrogryposis
He has adapted very well to his limitations!
You can find his profile here
Could he be YOUR son?
Friday, August 27, 2010
Aaron's Family
Please keep the Nalles in your thoughts and prayers. They once again are facing some serious difficulties in getting Aaron out of that institution and home to his brothers.
A New Picture of Madeline
She is 5 years old
She has likely been an orphan since birth
She is lucky to still be at her orphanage. Because she is 5 she is at risk of being transferred to an institution very, very soon.
Once she is transferred she maybe severely neglected & will have absolutely no chance at a future
She sits well, eats independently, likes to play, reacts well to adults, speaks in sentences and is independently mobile in her wheelchair and overall she a very sweet and joyful little girl.
She happens to have Arthrogryposis which includes clubfeet
She has so much potential. Her forever family needs to find her & fast!
She has $2000 in the grant fund through Reece's Rainbow toward the cost of her adoption
If you aren't in a position to adopt you can donate to her grant fund!
Is she YOUR daughter????
Saturday, August 21, 2010
Arthrogryposis Awareness
Arthrogryposis Awareness
Arthrogryposis Multiplex Congenita (AMC) means: Multiple Joint Contractures Present at Birth
A joint contacture is a joint that lacks normal range of motion or in other word is stiff or curved.
Its an umbrella term, which means AMC can be part of many syndromes & other underlying conditions.
More then 3 joints have to affected in 2 areas of the body to have a diagnosis of AMC
It occurs 1 in 3,000 live births
All joints can be affected including the spine & jaw
Joint contractures develop because the unborn baby fails to move properly. Movement is vital to proper joint development
Cognitive development (intelligence) is almost always normal
There are approx. 400 types of Arthrogryposis
About 1/3 of cases of AMC are Amyoplasia type which is non-genetic & sporadic in the population. There is no known cause for Amyoplasia.
Most Distal Arthrogryposis types & most syndromes (like Escobar, Sheldon-Hall) are genetic in origin
20-30% of babies born w/ AMC will die in the newborn period because they have a lethal genetic type or they severe central nervous system dysfunction
Some individuals do not have an identified type
Common joint contractures include: Clubbed feet or vertical talus, extended or flexed knees, dislocated and/or externally rotated hips, internally rotated shoulders, extended or flexed elbows, flexed wrists, adducted thumbs (stuck-in-palm), fingers are fisted or extended
There is no cure for Arthrogryposis, just treatment to reduce the severity of the joint contractures & increase the function level of the individual.
Treatment often includes: Stretching the joints multiple times per day, serial casting, tendon releases & lengthening, osteotomies, splinting & bracing, external fixators, physical, occupational & speech therapy.
Despite the fact there is no cure most kids with Arthrogryposis grow up to be independent & successful adults
More research needs to be done in the cause of Amyoplasia, mapping the genes in genetic types & long-term outcome studies need to done for common surgical procedures in this diagnosis.
To learn more about Arthrogryposis: www.amcsupport.org
Subscribe to:
Posts (Atom)