Madeline has a family!!

Little Miss Madeline in Eastern Europe has a family!! She has so much potential, I cant wait to hear who will be the lucky parents!

Meet Josiah

Meet Josiah

This little guy is 4 years old

He is available for adoption

He is living in China at Harmony House

You can find China's requirements for adoptive families here

Unfortunately he doesn't have any grants available

He has bilateral clubbed feet, a dislocated hip and he can't use his arms due to deformities. I am guessing that his overall diagnosis is Arthrogryposis

He has adapted very well to his limitations!

You can find his profile here

Could he be YOUR son?

Aaron's Family

Please keep the Nalles in your thoughts and prayers. They once again are facing some serious difficulties in getting Aaron out of that institution and home to his brothers.

http://covenantbuilders.blogspot.com/

A New Picture of Madeline

A New picture of Madeline...she's growing up!

She is 5 years old

She has likely been an orphan since birth

She is lucky to still be at her orphanage. Because she is 5 she is at risk of being transferred to an institution very, very soon.

Once she is transferred she maybe severely neglected & will have absolutely no chance at a future

She sits well, eats independently, likes to play, reacts well to adults, speaks in sentences and is independently mobile in her wheelchair and overall she a very sweet and joyful little girl.

She happens to have Arthrogryposis which includes clubfeet

She has so much potential. Her forever family needs to find her & fast!

She has $2000 in the grant fund through Reece's Rainbow toward the cost of her adoption

If you aren't in a position to adopt you can donate to her grant fund!

Is she YOUR daughter????

Arthrogryposis Awareness

Arthrogryposis Awareness

Arthrogryposis Multiplex Congenita (AMC) means: Multiple Joint Contractures Present at Birth

A joint contacture is a joint that lacks normal range of motion or in other word is stiff or curved.

Its an umbrella term, which means AMC can be part of many syndromes & other underlying conditions.

More then 3 joints have to affected in 2 areas of the body to have a diagnosis of AMC

It occurs 1 in 3,000 live births

All joints can be affected including the spine & jaw

Joint contractures develop because the unborn baby fails to move properly. Movement is vital to proper joint development

Cognitive development (intelligence) is almost always normal

There are approx. 400 types of Arthrogryposis

About 1/3 of cases of AMC are Amyoplasia type which is non-genetic & sporadic in the population. There is no known cause for Amyoplasia.

Most Distal Arthrogryposis types & most syndromes (like Escobar, Sheldon-Hall) are genetic in origin

20-30% of babies born w/ AMC will die in the newborn period because they have a lethal genetic type or they severe central nervous system dysfunction

Some individuals do not have an identified type

Common joint contractures include: Clubbed feet or vertical talus, extended or flexed knees, dislocated and/or externally rotated hips, internally rotated shoulders, extended or flexed elbows, flexed wrists, adducted thumbs (stuck-in-palm), fingers are fisted or extended

There is no cure for Arthrogryposis, just treatment to reduce the severity of the joint contractures & increase the function level of the individual.

Treatment often includes: Stretching the joints multiple times per day, serial casting, tendon releases & lengthening, osteotomies, splinting & bracing, external fixators, physical, occupational & speech therapy.

Despite the fact there is no cure most kids with Arthrogryposis grow up to be independent & successful adults

More research needs to be done in the cause of Amyoplasia, mapping the genes in genetic types & long-term outcome studies need to done for common surgical procedures in this diagnosis.

To learn more about Arthrogryposis: www.amcsupport.org

2.5 yr w/ AMC needs a family-Domestic

If anyone is considering domestic adoption, especially of an AMC'er AMC Suport has a contact who is an guardian ad litem in the state of Florida for a beautiful, curly haired, 2 1/2 year old little boy with AMC and she is desperately seeking help in finding his forever family!

If you are a member of AMC Support: www.amcsupport.org you can find more info as well as a few photos in the Adoption Forum of our message boards.

If you are not a member of AMC Support, you're more than welcome to join (its *Free*) by registering at the following link: www.amcsupportorg/forum/ucp.php?mode=register

If you do not wish to register with the website, please feel free to contact: bod@amcsupport.org for more information. We would very much like to see this child find his Forever Family.

Grady has a family!!!!!!!!

Grady has a family

!!!!!!!!!!!!!!!!!!!!!!

Please go here:

http://www.reecesrainbow.org/familysponsorshipnew.html

If you want to read about his new family and/or donate to their adoption fund!