Meet Madeline's Family!
Click here to donate to her families adoption fund
A typical international adoption costs $20,000 so every penny helps!
Sunday, September 12, 2010
Meet Leo
Meet Leo
Leo is 5.5 years old (born Dec. 4, 2002)
He is happy and social
He has lower paraplegia, secondary arthrogryposis, right-side scoliosis,
convergent squint
He is likely living in a mental institution where the conditions are less then ideal for a child
To see Leo's profile on Reece's Rainbow or to find out more information
click here
Monday, August 30, 2010
Madeline has a family!!
Little Miss Madeline in Eastern Europe has a family!! She has so much potential, I cant wait to hear who will be the lucky parents!
Saturday, August 28, 2010
Meet Josiah
Meet Josiah
This little guy is 4 years old
He is available for adoption
He is living in China at Harmony House
You can find China's requirements for adoptive families here
Unfortunately he doesn't have any grants available
He has bilateral clubbed feet, a dislocated hip and he can't use his arms due to deformities. I am guessing that his overall diagnosis is Arthrogryposis
He has adapted very well to his limitations!
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You can find his profile here
Could he be YOUR son?
Friday, August 27, 2010
Aaron's Family
Please keep the Nalles in your thoughts and prayers. They once again are facing some serious difficulties in getting Aaron out of that institution and home to his brothers.
A New Picture of Madeline
She is 5 years old
She has likely been an orphan since birth
She is lucky to still be at her orphanage. Because she is 5 she is at risk of being transferred to an institution very, very soon.
Once she is transferred she maybe severely neglected & will have absolutely no chance at a future
She sits well, eats independently, likes to play, reacts well to adults, speaks in sentences and is independently mobile in her wheelchair and overall she a very sweet and joyful little girl.
She happens to have Arthrogryposis which includes clubfeet
She has so much potential. Her forever family needs to find her & fast!
She has $2000 in the grant fund through Reece's Rainbow toward the cost of her adoption
If you aren't in a position to adopt you can donate to her grant fund!
Is she YOUR daughter????
Saturday, August 21, 2010
Arthrogryposis Awareness
Arthrogryposis Awareness
Arthrogryposis Multiplex Congenita (AMC) means: Multiple Joint Contractures Present at Birth
A joint contacture is a joint that lacks normal range of motion or in other word is stiff or curved.
Its an umbrella term, which means AMC can be part of many syndromes & other underlying conditions.
More then 3 joints have to affected in 2 areas of the body to have a diagnosis of AMC
It occurs 1 in 3,000 live births
All joints can be affected including the spine & jaw
Joint contractures develop because the unborn baby fails to move properly. Movement is vital to proper joint development
Cognitive development (intelligence) is almost always normal
There are approx. 400 types of Arthrogryposis
About 1/3 of cases of AMC are Amyoplasia type which is non-genetic & sporadic in the population. There is no known cause for Amyoplasia.
Most Distal Arthrogryposis types & most syndromes (like Escobar, Sheldon-Hall) are genetic in origin
20-30% of babies born w/ AMC will die in the newborn period because they have a lethal genetic type or they severe central nervous system dysfunction
Some individuals do not have an identified type
Common joint contractures include: Clubbed feet or vertical talus, extended or flexed knees, dislocated and/or externally rotated hips, internally rotated shoulders, extended or flexed elbows, flexed wrists, adducted thumbs (stuck-in-palm), fingers are fisted or extended
There is no cure for Arthrogryposis, just treatment to reduce the severity of the joint contractures & increase the function level of the individual.
Treatment often includes: Stretching the joints multiple times per day, serial casting, tendon releases & lengthening, osteotomies, splinting & bracing, external fixators, physical, occupational & speech therapy.
Despite the fact there is no cure most kids with Arthrogryposis grow up to be independent & successful adults
More research needs to be done in the cause of Amyoplasia, mapping the genes in genetic types & long-term outcome studies need to done for common surgical procedures in this diagnosis.
To learn more about Arthrogryposis: www.amcsupport.org
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