Orphans with Arthrogryposis

There are kids with Arthrogryposis all over the world who wait for a family to call their own. Every child should have a Mama and Papa to love them. Sadly many kids will never know the love of a family as they will live out their shortened lives in institutions. The children posted here are from Reecesrainbow.com If you can't adopt, you can donate to their grants on reecesrainbow.com Don't leave them to die in institutions.

Friday, June 4, 2010

Rainbow Kids

Rainbow Kids is another organization that advocates for orphans! Unlike Reece's Rainbow they advocate for kids who are typical but they also have a special needs section! They have several kids listed with Arthrogryposis & other related congenital orthopedic special needs (like clubfoot)

In order to view these kids profiles you'll have to create an account but its very easy to do so.

To create an account click here

Most of theses kids profiles have limited information & few view have pictures attached but they have the contact information of the agency they're listed with

Once you've created an account click here to view the profiles of kids with Arthrogryposis

This is Delilah!!

This doll's name is Delilah. She is just over a year old and has a syndrome called Larsen's Syndrome. Larsen's syndrome is congenital dislocations of the joints. However, some kids with this syndrome are also born with Arthrogryposis. In other words, Larsen's Syndrome can have Arthrogryposis as a trait & is under the '"umbrella" of Arthrogryposis.



Girl, Born March 26, 2009
Sweet Deliliah was born with Larsen's Syndrome. She does have additional limb deformities, in addition to the typical hand and foot differences common in Larsen syndrome. Hoping to learn more about any possible medical or cognitive needs she has as a result of her genetic differences.

To inquire more about becoming Delilah's family click here

Thursday, June 3, 2010

Victoria has lost her family

I'm sad to say this adorable little girl has lost her family. The family that had committed to bring her home is now unable to do so



This sweet little girl is living in an institution in Eastern Europe where she isn't allowed to reach her full potiental due to lack of medical treatment & love from a forever family.

She is already 7 and a half years old & the sooner she is brought the better her mental, physical & emotional development will be long-term

Her Arthrogryposis seem to affect only her lower extremities & is clearly a "classic" case of AMC (externally rotated hips, flexion contractures of the knees & equniovarus (clubfoot) deformity of her feet) With the right medical intervention this little girl has the potential to be standing & walking assisted maybe even unassisted in a couple years time.

She reminds me a lot of Evan & look how far he has come with the correct medical intervention despite having severe upper & lower extremity Arthrogryposis. He was adopted at 3.5 years old from Ukraine!


If Victoria is your daughter click here for more information


Friday, April 30, 2010

Victoria has a family!!!!!


Victoria has a family!!!!!!!!


Update: unfortunately Victoria's committed family was unable to bring her home. She still waits. WOuldnt you love a lovely daughter like Victoria?

Meet Moira!!

This is Moira!!!!!! She is also under a year old!!!!!!!

is she YOUR daughter???


Born August 10, 2009

Miss Moira is not real happy, our team must have caught her in a grumpy mood! But she is described as typically sweet and affectionate. She was born with a cleft palate and arthrogryposis.

Additional photos available.

Her listing on Reece's Rainbow

Contact Andrea at Reece's Rainbow for more information: bamaroberts@comcast.net

Thursday, April 29, 2010

Look who is home!!!!!

Look who is HOME with her forever family!!!!!!!!

Meet Anastasia!

This is Anastasia!!! She isn't even a year old!!!!


Born June 25, 2009

Anastasia is a sweet girl who was born with arthrogryposis. We are waiting for her medical records, but she clearly has hydrocephaly as well. Hoping to find out if a shunt has been placed yet or not (this pic is from Oct 2009). Anastasia desperately needs a family.

More photos available

Is she YOUR daughter??????????

Click here for to see her listing on Reece's Rainbow

Contact Andrea for more information bamaroberts@comcast.net